MLDA
Ways to Support   |   Be a Friend   |   Be a Member   |   Feedback & Enquiry   |   Contact Us


  Find us on:    


Sign Up for E-Newsletter  

 
MLDA
   Home » Patients » Memorials » 
  Patients
  Patients Stories
  Patient Communities
  Clinical Trials
  Memorials
 
 
 

Hariharan (1998-2014)

21 April 2014

Hariharan(1998-2014) who was conceived and delivered normally and due to financial difficulties, his parents was unaware of him carried MPS III 3A(Sanflippo syndrome) to this world. We met in 2011 when MLDA was established, at that time he couldn’t walk, he hardly spoke anymore due to severe brain damage. His mother's greatest wish is to hear Hariharan call her ‘Ama’ again, now all these would remain her unfulfilled dream! He passed away peacefully this morning at GH Seremban after few weeks of tube feeding, we pray for his soul to be amongst the devas in heaven now. Please Pray for us, assist us in whatever way possible, if ERT is not given to existing 20 awaiting patients who is still healthy, then we just can wait for the day when the CREATOR to take his/her last breath away.



  printer Printer-friendly version   printer Send link to a friend

 
 
| | | |
© Copyright Malaysia Lysosomal Diseases Association (Pertubuhan Penyakit Lisosomal Malaysia) 2011    All rights reserved.
Registration No: 2621-NSE
1520, TAMAN BUKIT KAYA, 70200 SEREMBAN, NEGERI SEMBILAN, MALAYSIA.
Email:       Telephone: 019-6899620