MLDA
Ways to Support   |   Be a Friend   |   Be a Member   |   Feedback & Enquiry   |   Contact Us


  Find us on:    


Sign Up for E-Newsletter  

 
MLDA
   Home » Updates & Publications » Photo Gallery » 
  Updates & Publications
  E-Newsletters
  Photo Gallery
  Parent Blogs
  Video Gallery
 
 
 

World Rare Disease Day 2014

22 April 2014

 "Join Together for Better Care" is the theme for 2014 World Rare Disease Day, a day celebrate by more than 80 countries in this world. This is the first time MLDA collaborate with MRDS and MMS for this activities, this shall create greater voice and we are so happy yang Berbahagia Senator Bathmavathi was so compassionate by listening to our appeal and voices. We are looking for a better future for our children. 
As our government going all out spending all the resources to search for MH370, we as the parents also spending all our might and effort to advocate for LSD children treatment right



  printer Printer-friendly version   printer Send link to a friend

 
 
| | | |
© Copyright Malaysia Lysosomal Diseases Association (Pertubuhan Penyakit Lisosomal Malaysia) 2011    All rights reserved.
Registration No: 2621-NSE
1520, TAMAN BUKIT KAYA, 70200 SEREMBAN, NEGERI SEMBILAN, MALAYSIA.
Email:       Telephone: 019-6899620