President, Ir. Lee Yee Seng
Ir. Lee is passionate about patient advocacy and ensuring that all patients receive access to appropriate care. Despite being busy as an engineer at Tenaga Nasional Berhad, he will take the time to fight for LSD patients. Having two daughter (Yen Ling and Wen Ling) with Pompe's disease made him eager to help other LSD families so that they would not have the same fate.
Vice-President, Zabidi Ali
Zabidi Ali is always helping and caring for the family in MLDA. He have a son Ardi Izuddin which was the only patient diagnosed with Sly Syndrome (MPS VII) in South East Asia. In 2017, he is grateful that his son will undergo ERT treatment with the trial drug.
Secretary, Lim Hock Kee
Lim Hock Kee has helped MLDA with secretary worked since 2014. He was always thinking about the future of LSD children as he have a son (Lim Wei-Jann) with Hunter Syndrome (MPS II) disease.
Treasurer, Gan Chee Hau (Michael)
Michael made a decision to move to Kuala Lumpur after his son (Gan Zii Han) diagnosed with Pompe disease. As a new parents, they feel blessed that his son able to get early treatment in 2018.
Committee Member, Raymond Lai
Raymond has helped MLDA organizing plenty of fund raising events from 2012 to 2018. He have a daughter, Lai Carmen diagnosed with Maroteaux-Lamy syndrome (MPSVI) disease. Raymond always will joined charity run and create awareness about LSD disease.
Committee Member, Rubee Ahmad
Despite of her busy career at McDonalds, she joined few advocacy programs to create awareness on LSD disease. Rubee have two heroes with Hunter Syndrome (MPS II) disease. Currently, NGO Hub are helping her to raise funds for her sons. Click here to donate! https://www.ngohub.asia/campaigns/support-needed-for-children-born-with-rare-disease
Committee Member, Rachel Suet
Rachel have a Morquio Syndrome (MPS IV) disease. Nevertheless, she succeeded in completing his degree education in Law at Brickfields Asia College (BAC). Currently, she works at BAC as a community advocate. She decided to establish the Rachel Suet Trust Funds (RSTF) to help her raising funds.