World Sanfilippo Awareness Day is about spreading awareness and sparking conversations globally about Sanfilippo Syndrome, a disease few have heard of. This special day of Awareness is in honor of the children around the world living with Sanfilippo Syndrome today, and those who have passed away.
Let's support #SanfilippoSyndrome! Post a photo of the your child’s (or the one’s you love) hand in yours on social media (choose from the facebook frame), and challenge others to do the same. The goal is to spark people around the world to post pictures of them holding hands with another. And not just those directly impacted by Sanfilippo, but any person holding the hands of the ones they love.