Meet #SanfilippoSyndromeWarrior, Muhammad Aqeef Hizri (4 years old) and his brother Muhammad Ammar Amsyar (6 years old). Ammar was diagnosed with #SanfilippoSyndrome when he was 3 years old, while Aqeef few months after his birth. At first, his mother, Puan Lia Nabila felt devastated because they have limited information about the disease and the medication are still under trial. But, thanks to her family, friends and other support group, she is now stronger than before and believe that one day their sons will receive the drugs they desperately need to treat their conditions.
Read more stories about Amaar and Aqeef here at https://bit.ly/2NBlp1o or subscribe to our Youtube channel https://youtu.be/MGzUfepBtks, every funds collected helps reduce the burden on families. Or, you can make a donation directly to MLDA by clicking here https://bit.ly/33gdVrk.