On 2 December 2018, a group of Brickfields Asia College (BAC) students decided to choose us (Malaysia Lysosomal Diseases Association, MLDA) as the beneficiary for their project. "A Walk of Hope", a project aims to raise awareness on rare disease in Malaysia and to expose public and students about rare disease. This meaningful walkathon event is held at Taman Botani Perdana, Kuala Lumpur. Five family patients walked together with the lecturers and students with 2.2km along a lake at Taman Botani. Event started with a speech by MLDA Vice President, En. Zabidi Ali and continue with a sharing session by a father with rare disease daughter, Mr. Siva and speech by the founder of BAC college, Mr. Rajan. Through this event, we hope more people would not take rare disease issues as a rare topic to be discussed. Patients are incresing every year, therefore, we need all support from the policy makers, governemnt, professionals, students and public to raise funds as urgent assistance in terms of treatment is crucial.
ALONE we are RARE, TOGETHER we are STRONGER.