E-Newsletters

Warmest wishes from us at Malaysia Lysosomal Diseases Association (MLDA)!

We would like to take this opportunity to once again express our highest gratitude to you for your willingness to support us by reaching out with your helping hands to all of our patients. Here, we wish to update you on some of the highlights during our “Every Life Counts” Charity Dinner that was held on the 6th of December 2014 at the Grand Ball Room @ The Place, One City USJ 25 Subang Jaya.

 

A SUCCESSFUL DINNER WITH THE ATTENDANCE OF THE NEGERI SEMBILAN ROYAL FAMILY

 

We were honoured and blessed to have the privilege to being able to have dined with Yang di-Pertuan Besar Negeri Sembilan Tuanku Muhriz Tuanku Munawir and his consort Tunku Ampuan Besar of Negeri Sembilan Tuanku Aishah Rohani Tengku Besar Mahmud on that memorable event. Their presence truly have made a positive difference!

 

SIMPLE YET MEANINGFUL PERFORMANCES TO ENTERTAIN ALL THE ATTENDANCES

We had arranged for various types of performances during the course of the event. To name a few, we had some of the sweet ballerinas from the Seremban Ballet Academy mesmerized us, plays from our very own gifted LSD children and a few songs sung by our local artist, Bob Yusof! It was indeed a heart-warming dinner!

THANK YOU ALL THE GENEROUS DONORS

Apart from that, we managed to collect approximately RM 800,000 throughout that night! Kudos to all of you!

Besides that, the Ministry of Finance also contributed RM 2 million. Four organisation – BioMarin Pharmaceutical Inc, Knox Sierra Sdn. Bhd., Titijaya Land Bhd and event partner MCT Consortium Bhd had also stepped forward with a RM 50,000 contribution each.

 

In conjunction with the Chinese New Year celebration, we would to wish you and family a

Wonderful and prosperous GOAT year!!

Salam 1 Malaysia

 

TNB menyumbang RM5000 untuk PPLM Program Hari Kesedaran Penyakit Mucopolysaccharidosis

08 Julai 2011 – program hari kesedaran penyakit Mucopolysaccharidosis yang lebih dikenali sebagai Penyakit MPS telah diadakan di Dewan Theaterette Aras 7, Wisma TNB Seremban yang turut dihadiri seramai 100 orang tetamu terdiri daripada Jawatankuasa Keselamatan Kampung, Kebajikan Masyarakat, media massa, doktor pakar dari HKL serta anggota kerja TNB Seremban bagi memeriahkan lagi majlis tersebut.

Pengerusi Pertubuhan Penyakit Lisosomal Malaysia (PPLM) , Ir. Lee Yee Seng dalam ucapannya memohon orang ramai membantu pesakit-pesakit Lysosomal Storage Diseases (LSD) ini di mana 2 orang anak beliau menghidapi penyakit ini. Dengan melihat keadaan anaknya yang semakin pulih, beliau berhasrat menubuhkan pertubuhan seperti ini bagi membantu kanak-kanak lain yang turut mempunyai nasib yang sama.

YB Dato Hasim Bin Rusdi, Pengerusi Jawatankuasa Bertindak Pembangunan Luar Bandar, Hal Ehwal Pengguna dan Kemudahan Awam semasa upacara perasmian, berjanji akan manyarankan kerajaan Negeri untuk mendirikan pusat rawatan khas di Hospital Tunku Jaafar Seremban untuk pesakit-pesakit LSD.

Bagi menjalankan tanggungjawab sosial (CSR), TNB telah menyumbang RM5,000 kepada Pertubuhan Penyakit Lisosomal Malaysia pada majlis tersebut.

Please download the e-Newsletter below for further reading...

MLDA newsletter 1(Rev).pdf