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Babies Pompe

4 babies Pompe with different races is saved on 2017
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Ardi Izzuddin

First trial drug in Malaysia for MPS VII
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Nur Afrina Balqish

Nur Afrina Balqis is a very happy and playful child with other friends. However, no one thinks that she is suffering from a serious disease.
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Darmash is a 11 year old MPS II boy from Mentakab Pahang. He is still very active and is currently in the waiting list for treatment to start.
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Carmen Lai

 Carmen Lai, MPS IV Patient with High Determination

Carmen Lai was diagnosed with MPS type IV after her parents notice her finger are short and stubby. When she grows up, she was...
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Pravin Raj Prabagaran


About Pravin Raj
Pravin is 25 and the only child in the family and has diagnosed with MPS IV A or Morquio Syndrome.Nevertheless,he feels...
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Yen Ling and Wei Ling

The parents of Yen Ling and Wei Ling have three lovely children, each one of them so special and different from the other. Yen Ling and Wei Ling, just like their brother Sze Hong, were of average weight when they were born and their mother delivered both sisters normally without any complications.
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Adnin and Aqilah – MPS IVA or Morquio Syndrome

They were diagnosed at City Hospital, Nottingham, UK, a day before Adnin’s eighth birthday, where traces of keratane sulphate was found in Adnin’s blood.
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