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  In the News
  MLDA Launch - October 9th 2011
  ‘Every Life Counts’ Solidarity Campaign
  General News
 
 
 
 
“英雄奖"

(吉隆坡13日讯)6名不分宗教、种族背景助人的“英雄”出炉,他们凭着关爱与大爱精神,荣获隆雪中华总商会和《南洋商报》联办的首届“英雄奖”。
邀部长出席颁奖
“英雄奖”筹委会主席拿督陈镇明今日在记者会上宣布,6名得主是胡德周、叶玉梅、许瑞霞、慕因慕先、李意盛以及叶茵妮。
» Read more..
 
 
Anugerah My Hero

Anugerah My Hero, anjuran Dewan Perniagaan dan Perindustrian Cina Kuala Lumpur dan Selangor (KLSCCCI), mengiktiraf enam individu yang berjasa menyumbang kepada masyarakat tanpa mengenal batas kaum, agama dan kedudukan.
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A SILENT WALK IN THE NIGHT

Silent Walk , Walk Silently?
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Sunway South Quay Sdn Bhd Donated RM 2,000

Thank you to Mr Jason Lee who has been so generous donated RM 2,000 to MLDA
» Read more..
 
 
Punca Penyakit Jarang Jumpa

''Ini kerana, pesakit yang menghidap Penyakit Jarang Jumpa biasanya jarang bergaul kerana takut dan khuatir tidak diterima oleh masyarakat sekeliling.
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衛部:藥物費高昂‧暫無法設罕見病基金會

“希望政府或衛生部對罕見疾病的政策作出改進,在醫藥制度和配藥的撥款上,能照顧到各族群的病患和家屬。”
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'Guidelines On Ethical Issues In Medical Genetics Services In Malaysia'

MLDA invited to join this session to contribute and share ideas.
» Read more..
 
 
International MPS Network Meeting

. From this meeting we can see advance country which have a establish SYSTEM will take full care of their patient benefit.
» Read more..
 

 
   
 


 
 
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© Copyright Malaysia Lysosomal Diseases Association (Pertubuhan Penyakit Lisosomal Malaysia) 2011    All rights reserved.
Registration No: 2621-NSE
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